Trauma in People with Intellectual and Developmental Disabilities: Reactions of Parents and Caregivers to Research Participation

Autor/inn/en	Scotti, Joseph R.; Stevens, Sarah B.; Jacoby, Vanessa M.; Bracken, Magdalene R.; Freed, Rachel; Schmidt, Elizabeth
Titel	Trauma in People with Intellectual and Developmental Disabilities: Reactions of Parents and Caregivers to Research Participation
Quelle	In: Intellectual and Developmental Disabilities, 50 (2012) 3, S.199-206 (8 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1934-9556
DOI	10.1352/1934-9556-50.3.199
Schlagwörter	Developmental Disabilities; Psychometrics; Caregivers; Mental Retardation; Stress Variables; Parents; Behavior Problems; Diseases; Responses; Questionnaires; Participation; Ethics; Physical Disabilities + Suchen Sie Ihr Suchwort? Entwicklungsstörung; Psychometry; Psychometrie; Caregiver; Carer; Betreuungsperson; Pfleger; Geistige Behinderung; Eltern; Disease; Krankheit; Fragebogen; Teilnahme; Ethik; Physical handicap; Körperbehinderung
Abstract	Generally, studies have revealed that only a minority of people are bothered by participation in research on traumatic stress. Severity of traumatic events and subsequent responses are typically unrelated to negative reactions. We included 386 family members and caregivers (respondents) of people with intellectual and developmental disabilities (focus people). Focus people (ages 4-82) had a wide range of physical and intellectual disabilities, medical and behavioral problems, and exposure to potentially traumatic events. The measures of impact of research participation (based on J. I. Ruzek & D. F. Zatzick's [2000] Reactions to Research Participation Questionnaire [RRPQ]; S. Folkman and R. S. Lazarus's [1986, 1988] Emotional Responses to Participation Scale) showed good psychometric properties. Response to participation was highly skewed toward good understanding of informed consent, valuing participation, and minimal negative reactions. Number of traumatic events was related, positively, to only one RRPQ subscale: Valuing Participation. Implications for research and clinical work are discussed. (As Provided).
Anmerkungen	American Association on Intellectual and Developmental Disabilities. P.O. Box 7065, Lawrence, KS 66044-7065. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://aaiddjournals.org/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10