The Training and Support Programme for Parents of Children with Ataxia: Parents' Perspectives

Autor/inn/en	Powell, L. A.; Barlow, J. H.
Titel	The Training and Support Programme for Parents of Children with Ataxia: Parents' Perspectives
Quelle	In: Early Child Development and Care, 177 (2007) 5, S.507-520 (14 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0300-4430
Schlagwörter	Social Networks; Parent Attitudes; Parent Education; Physical Disabilities; Program Evaluation; Program Effectiveness; Psychomotor Skills; Interviews; Observation; Nonverbal Communication; Psychological Patterns; Eating Habits; Physical Health; Mental Health; Foreign Countries; United Kingdom + Suchen Sie Ihr Suchwort? Social network; Soziales Netzwerk; Elternverhalten; Parents education; Elternbildung; Elternschule; Physical handicap; Körperbehinderung; Programme evaluation; Programmevaluation; Psychomotorische Aktivität; Interviewing; Interviewtechnik; Beobachtung; Non-verbal communication; Nonverbale Kommunikation; Ernährungsgewohnheit; Essgewohnheit; Gesundheitszustand; Psychohygiene; Ausland; Großbritannien
Abstract	The aim of the study was to assess the Training and Support Programme (TSP) among parents of children with ataxia. Twenty-seven parents and their children completed the TSP. Data were collected by home record sheets and observation sheets completed by parents and therapists, respectively, and telephone interviews with 10 parents. Benefits reported included improvements in children's stiffness, "jumping legs", agitation, energy and activity levels, circulation, balance, eating, non-verbal communication, relaxation and happiness. One parent had become "more accepting" of their child's ataxia. Several families attended the TSP in one location. This facilitated the development of a "social network" of similar families caring for children with ataxia. A randomised controlled trial would be necessary to determine whether the changes reported here are in fact due to attending the TSP. Such a study would benefit from the inclusion of children as active participants in the research process. (Contains 1 table.) (Author).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10