Down Syndrome: Parental Experiences of a Postnatal Diagnosis

Autor/inn/en	Mc Grane, Fiona; Lynn, Fiona; Balfe, Joanne; Molloy, Eleanor; Marsh, Lynne
Titel	Down Syndrome: Parental Experiences of a Postnatal Diagnosis
Quelle	In: Journal of Intellectual Disabilities, 27 (2023) 4, S.1032-1044 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Mc Grane, Fiona)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1744-6295
DOI	10.1177/17446295221106151
Schlagwörter	Foreign Countries; Down Syndrome; Parent Attitudes; Clinical Diagnosis; Screening Tests; Pregnancy; Emotional Response; Information Dissemination; Coping; Child Rearing; Experience; Ireland + Suchen Sie Ihr Suchwort? Ausland; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Elternverhalten; Screening-Verfahren; Schwangerschaft; Emotionales Verhalten; Informationsverbreitung; Bewältigung; Kindererziehung; Erfahrung; Irland
Abstract	Globally it is estimated that Down syndrome occurs in 1 in 800 live births (Bull 2020). It has also been estimated that the incidence of Down syndrome occurs in 1/444 live births in the Republic of Ireland. Given the prevalence of Down syndrome births in Ireland and the fact that care is provided by the majority of parents at home, this qualitative study aimed to explore the experiences of Irish parents receiving a postnatal diagnosis of Down syndrome. A qualitative research approach was used through semi structured interviews. Eight parents of a baby diagnosed postnatally with Down syndrome participated in this study sharing their stories of their postnatal diagnosis experiences. Five overarching themes emerged using a descriptive thematic analysis; 1. prenatal screening, pregnancy and delivery; 2. how the diagnosis was delivered; 3. setting and emotional experiences; 4. moving on with the postnatal diagnosis and 5. Future recommendations from parents' perspectives. This study highlighted the importance of the need for clinicians to ensure that partners are present at the time of the disclosure, that ample time is allocated and that verbal and written communications are provided to parents using less medical jargon when delivering the postnatal diagnosis of Down syndrome. These reasonable adjustments could alleviate parental anxiety at this critical juncture in their lives. Online resources and support forums were also identified as an integral support for families on discharge from the maternity centres and in the early months and years. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01