The Potential Burden Experienced by South African Caregivers of Children with Severe Intellectual Disability

Autor/inn/en	Van der Mescht, Pauli; Geertsema, Salome; le Roux, Mia; Graham, Marien A.; Johnson, Ensa
Titel	The Potential Burden Experienced by South African Caregivers of Children with Severe Intellectual Disability
Quelle	In: South African Journal of Childhood Education, 13 (2023) 1, Artikel 1219 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext kostenfreie Datei Verfügbarkeit
Zusatzinformation	ORCID (Van der Mescht, Pauli) ORCID (Geertsema, Salome) ORCID (le Roux, Mia) ORCID (Graham, Marien A.) ORCID (Johnson, Ensa)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	2223-7674
Schlagwörter	Foreign Countries; Child Rearing; Severe Intellectual Disability; Caregiver Role; Parent Responsibility; Family Role; Social Support Groups; Stress Variables; Quality of Life; Risk; South Africa + Suchen Sie Ihr Suchwort? Ausland; Kindererziehung; Social support; Soziale Unterstützung; Lebensqualität; Risiko; Südafrika; Süd-Afrika; Republik Südafrika; Südafrikanische Republik
Abstract	Background: Physical, financial, social and emotional demands placed on caregivers caring for their children with severe intellectual disabilities (CWSID) could lead to high levels of burden. Aim: This study aimed to evaluate the potential level of burden experienced by South African caregivers and aimed to identify possible contributing risk factors for increased levels of caregiver burden. Setting: Online and community parent support groups. Methods: This quantitative survey design study utilised data from 218 South African caregivers of CWSID. Both descriptive and inferential statistics were used for analysis. Family is the main support for 67% of participants. Results: Moderate to severe levels of caregiver burden were reported. No definite links between potentially contributing demographic risk factors and the overall level of caregiver burden were found. Caregivers of CWSID need to receive the required support from an early stage in the child's diagnosis to decrease potential caregiver burden and improve quality of life (QoL). Conclusion: Implications on intervention and prevention practices could inform the creation and implementation of a protocol to avert increased caregiver burden. Future research could be conducted to determine the implications of intervention towards CWSID and their family to decrease caregiver burden. Contribution: The study provided insight into the burden experienced by caregivers of CWSID. This is in line with the journal as it further proves how vulnerable CWSID are and the support they should be receiving from professionals. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01