Literaturnachweis - Detailanzeige
| Autor/inn/en | Angell, Amber M.; Lindly, Olivia J.; Floríndez, Daniella; Floríndez, Lucía I.; Duker, Leah I. Stein; Zuckerman, Katharine E.; Yin, Larry; Solomon, Olga |
|---|---|
| Titel | Pediatricians' Role in Healthcare for Latino Autistic Children: Shared Decision-Making versus "You've Got to Do Everything on Your Own" |
| Quelle | In: Autism: The International Journal of Research and Practice, 27 (2023) 8, S.2407-2421 (15 Seiten)
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| Zusatzinformation | ORCID (Angell, Amber M.) ORCID (Lindly, Olivia J.) ORCID (Duker, Leah I. Stein) ORCID (Zuckerman, Katharine E.) |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 1362-3613 |
| DOI | 10.1177/13623613231163056 |
| Schlagwörter | Pediatrics; Physicians; Role; Access to Health Care; Hispanic Americans; Autism Spectrum Disorders; Participative Decision Making; Clinical Diagnosis; Parent Attitudes; Physical Health; Child Development; Access to Information; Knowledge Level; Intervention; Young Children; Services; California (Los Angeles) |
| Abstract | Despite documented healthcare disparities among Latino autistic children, little is known about how their families experience the autism "diagnostic odyssey." Pediatricians have a critical role in the "diagnostic odyssey," but when it becomes arduous, parents may also use complementary health approaches, particularly when conventional care does not adequately address their concerns. Shared decision-making is important in healthcare for autistic children, especially when parents also choose complementary health approaches; but little is known about shared decision-making among Latino parents of autistic children. We conducted a 12-month ethnography with 12 bicultural/bilingual Latino families of autistic children to understand their healthcare experiences (conventional and complementary health approaches) for their children, focusing on shared decision-making. Thematic analysis revealed: (1) most pediatricians were involved early in the "diagnostic odyssey" but were largely uninvolved thereafter; (2) conventional healthcare was satisfactory to the parents for physical health, but not developmental issues; and (3) parents who used complementary health approaches were more frustrated about a lack of autism information from pediatricians than those who did not. Finally, (4) we describe two exemplars of successful shared decision-making between Latino parents and pediatricians. Increasing pediatricians' autism knowledge and ability to discuss complementary health approaches may facilitate shared decision-making and reduce healthcare disparities for Latino autistic children. (As Provided). |
| Anmerkungen | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2024/1/01 |
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