A Portfolio Analysis of Autism Research Funding in Aotearoa New Zealand 2007-2021

Autor/inn/en	Emerson, Lisa Marie; Pellicano, Elizabeth; Monk, Ruth; Lim, Melissa; Heaton, Jessica; McLay, Laurie
Titel	A Portfolio Analysis of Autism Research Funding in Aotearoa New Zealand 2007-2021
Quelle	In: Autism: The International Journal of Research and Practice, 27 (2023) 8, S.2256-2268 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Emerson, Lisa Marie) ORCID (Pellicano, Elizabeth) ORCID (McLay, Laurie)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613231155954
Schlagwörter	Foreign Countries; Autism Spectrum Disorders; Scientific Research; Portfolios (Background Materials); Portfolio Assessment; Financial Support; Grants; Biology; Research Needs; New Zealand + Suchen Sie Ihr Suchwort? Ausland; Autism; Autismus; Portfoliobeurteilung; Finanzielle Förderung; Grant; Finanzielle Beihilfe; Biologie; Forschungsbedarf; Neuseeland
Abstract	Previously documented global trends in autism research funding have been skewed towards biology research, which is at odds with the priorities expressed by autistic and autism community members. We aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand, and to explore the views of the autistic and autism communities on this funding distribution. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We categorised the funding for autism research to enable comparison to that previously documented in other countries. We elicited the views of the autistic and autism communities in relation to the funded autism research, through an online survey and a series of focus groups. The largest proportion of money and number of grants was awarded to biological research. Community members expressed dissatisfaction with this pattern of funding, and noted that it does not address the needs and priorities of the autistic community. Community members suggested that the funding pattern indicated a lack of autistic consultation and engagement in research design and funding allocation. The priorities of the autistic and autism communities need to be considered by researchers and funders alike. We discuss how autistic inclusion in research can be supported through decision-making regarding funding and ethics relating to autism research. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01