Literaturnachweis - Detailanzeige
Autor/inn/en | Emerson, Lisa Marie; Pellicano, Elizabeth; Monk, Ruth; Lim, Melissa; Heaton, Jessica; McLay, Laurie |
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Titel | A Portfolio Analysis of Autism Research Funding in Aotearoa New Zealand 2007-2021 |
Quelle | In: Autism: The International Journal of Research and Practice, 27 (2023) 8, S.2256-2268 (13 Seiten)
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Zusatzinformation | ORCID (Emerson, Lisa Marie) ORCID (Pellicano, Elizabeth) ORCID (McLay, Laurie) |
Sprache | englisch |
Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
ISSN | 1362-3613 |
DOI | 10.1177/13623613231155954 |
Schlagwörter | Foreign Countries; Autism Spectrum Disorders; Scientific Research; Portfolios (Background Materials); Portfolio Assessment; Financial Support; Grants; Biology; Research Needs; New Zealand |
Abstract | Previously documented global trends in autism research funding have been skewed towards biology research, which is at odds with the priorities expressed by autistic and autism community members. We aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand, and to explore the views of the autistic and autism communities on this funding distribution. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We categorised the funding for autism research to enable comparison to that previously documented in other countries. We elicited the views of the autistic and autism communities in relation to the funded autism research, through an online survey and a series of focus groups. The largest proportion of money and number of grants was awarded to biological research. Community members expressed dissatisfaction with this pattern of funding, and noted that it does not address the needs and priorities of the autistic community. Community members suggested that the funding pattern indicated a lack of autistic consultation and engagement in research design and funding allocation. The priorities of the autistic and autism communities need to be considered by researchers and funders alike. We discuss how autistic inclusion in research can be supported through decision-making regarding funding and ethics relating to autism research. (As Provided). |
Anmerkungen | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
Update | 2024/1/01 |