The Recognition, Assessment and Perceptions of Total Pain in People with Profound Intellectual Disabilities: A Mixed Methods Systematic Review

Autor/inn/en	Goodall, Maeve; Irving, Kate; Nevin, Mary
Titel	The Recognition, Assessment and Perceptions of Total Pain in People with Profound Intellectual Disabilities: A Mixed Methods Systematic Review
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 36 (2023) 5, S.940-950 (11 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Goodall, Maeve)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.13132
Schlagwörter	Severe Intellectual Disability; Pain; Perception; Knowledge Level; Evaluation; Social Influences; Psychological Patterns; Physical Health; Emotional Experience; Religious Factors; Research Needs; Caring; Research Reports; Expertise; Health Services + Suchen Sie Ihr Suchwort? Schmerz; Wahrnehmung; Wissensbasis; Evaluierung; Sozialer Einfluss; Gesundheitszustand; Forschungsbedarf; Care; Pflege; Sorge; Betreuung; Research report; Forschungsbericht; Expert appraisal; Health service; Gesundheitsdienst; Gesundheitswesen
Abstract	Background: People with profound intellectual disabilities are a population with complex comorbidities. Total pain recognises the interconnectedness of aspects of pain; social, psychological, physical, emotional, spiritual. Pain is under-recognised due to communication challenges and carers perceptions. This review's purpose is to synthesise current literature and provide guidance for future research and care. Methods: Five databases were searched in this mixed methods systematic review (Cinahl, Medline, Psycinfo, Web of Science, Scopus). Articles retrieved were reported via a PRISMA flow diagram. Quality appraisal utilised the mixed methods appraisal tool (MMAT). A convergent qualitative design was the method of data synthesis. Results: Data from 16 included articles generated four themes; Absent voices, reductionist assessment, pain intensity, valuing expertise. Data included physical pain only. Conclusion: Multifaceted pain needs inclusion in research. Assessment must consider the unique expressions of pain by individuals with profound intellectual disabilities. A sharing of expertise may improve pain care. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01