Stressful Experiences and Coping Strategies of Parents of Young Children with Down Syndrome: A Qualitative Study

Autor/inn/en	Celik, Pelin; Kara Uzun, Aysun
Titel	Stressful Experiences and Coping Strategies of Parents of Young Children with Down Syndrome: A Qualitative Study
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 36 (2023) 4, S.881-894 (14 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Celik, Pelin) ORCID (Kara Uzun, Aysun)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.13108
Schlagwörter	Stress Variables; Parent Attitudes; Parent Child Relationship; Down Syndrome; Coping; Caregivers; Social Discrimination; Futures (of Society); Barriers; Health; Educational Attainment; Help Seeking; Information Seeking; Information Needs; Positive Attitudes; Parent Role + Suchen Sie Ihr Suchwort? Elternverhalten; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Bewältigung; Caregiver; Carer; Betreuungsperson; Pfleger; Soziale Benachteiligung; Soziale Schließung; Future; Society; Zukunft; Gesundheit; Bildungsabschluss; Bildungsgut; Help-seeking behavior; Help-seeking behaviour; Hilfe suchendes Verhalten; Informationserschließung; Information need; Informationsbedürfnis; Parental role; Elternrolle
Abstract	Background: Previous studies have focused mostly on the negative experiences of parents of children with Down syndrome. We aimed to explore both the stressful experiences and coping strategies of parents from a non-Western country. Methods: Twenty-six parents of children aged 8-48 months with Down syndrome were included. Semi-structured interviews were conducted, and the data were analysed using thematic analysis. Results: The main themes of the stressful experiences were emotional burdens, caregiving burdens, struggle against stigma and discrimination, concerns about the future, challenges related to health, education, and financial issues. Parents used a variety of coping strategies to overcome the challenges by seeking support and help, searching for information, accepting and adapting, and adopting optimistic attitudes. Conclusion: Although being a parent of a child with Down syndrome has many challenges, most parents effectively used coping strategies and adapted their lives to their new parental roles in their child's early years. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01