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Autor/inn/enLemoine, Lise; Benoît Schneider
TitelFamily Support for (Increasingly) Older Adults with Down Syndrome: Factors Affecting Siblings' Involvement
QuelleIn: Journal of Intellectual Disabilities, 27 (2023) 2, S.315-335 (21 Seiten)
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ZusatzinformationORCID (Lemoine, Lise)
Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1744-6295
DOI10.1177/17446295221082725
SchlagwörterDown Syndrome; Adults; Siblings; Sibling Relationship; Caregiver Role; Family Role; Aging (Individuals); Intellectual Disability; Foreign Countries; Individual Characteristics; France
AbstractBackground: Life expectancy for people with Down syndrome is increasing, but older adults with Down syndrome are at greater risk of developing certain pathologies associated with ageing. When ageing parents can no longer look after their child with Down syndrome, their other children are often expected to shoulder this responsibility. Method: We asked 120 adult siblings of a person with Down syndrome to complete a questionnaire on their current and anticipated relationships. Results: Most respondents considered these relationships to be positive, but they expressed concerns about the effects of ageing and about having to organise their sibling with Down syndrome's future life. We investigated the impact of factors relating to the respondents and to their sibling with Down syndrome (age, gender, social inclusion, protection regime) on these general tendencies. Conclusion: Siblings need to be given support, for example, "via" discussion groups, to facilitate the transition to becoming caregivers. (As Provided).
AnmerkungenSAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2024/1/01
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