Moral Distress in Carers for People with an Intellectual Disability Who Died during the COVID-19 Pandemic, a Template Analysis Extending the Barlem and Ramos Model of Moral Distress

Autor/inn/en	Kelly, Kathyan; Margaret, Haigh; McCarron, Mary; McCallion, Philip; Burke, Eilish; Wormald, Andrew David
Titel	Moral Distress in Carers for People with an Intellectual Disability Who Died during the COVID-19 Pandemic, a Template Analysis Extending the Barlem and Ramos Model of Moral Distress
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 36 (2023) 3, S.507-515 (9 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (McCallion, Philip) ORCID (Wormald, Andrew David)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.13073
Schlagwörter	Intellectual Disability; COVID-19; Pandemics; Death; Caregiver Attitudes; Caregivers; Moral Values; Stress Variables; Well Being; Foreign Countries; Barriers; Caregiver Role; Ireland + Suchen Sie Ihr Suchwort? Intellect; Disability; Disabilities; Verstand; Behinderung; Sterbefall; Tod; Todesfall; Caregiver; Carer; Betreuungsperson; Pfleger; Moral value; Ethischer Wert; Well-being; Wellness; Wohlbefinden; Ausland; Irland
Abstract	Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth, semi-structured telephone interviews. Template analysis was used to analyze the interviews. Results: Obstructions in performing their duties left carers feeling powerless and experiencing moral conflict distress, moral constraint distress and moral uncertainty distress. Most managed to connect to the moral dimension in their work through peer support, understanding they fulfilled the wishes of the deceased, and/or thinking about how they or others did the best they could for the person they were caring for. Conclusions: This research demonstrates that while restrictions may have been effective in reducing the spread of COVID-19, they were potentially damaging to carer wellbeing. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01