Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy

Autor/inn/en	Kim, Tierney; Martinez, Kassandra; Cruz, Breanna Lopez; Huang, Jeannie S.; Stadnick, Nicole A.
Titel	Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy
Quelle	In: Journal of Autism and Developmental Disorders, 53 (2023) 4, S.1476-1482 (7 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Martinez, Kassandra)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0162-3257
DOI	10.1007/s10803-021-05346-5
Schlagwörter	Youth; Autism Spectrum Disorders; Caregiver Attitudes; Medical Services; Medical Care Evaluation; Experience; Improvement; California (San Diego) + Suchen Sie Ihr Suchwort? Jugend; Jugendlicher; Jugendalter; Autism; Autismus; Arzt; Erfahrung; Qualitätssteigerung
Abstract	Limited guidance is available for families of youth with ASD (YASD) to prepare for invasive medical procedures. This study examined caregiver perspectives regarding YASD's gastrointestinal endoscopy (GE) experience to improve the endoscopy experience for YASD. Thirty-four caregivers of YASD, (M = 9.85 years, SD = 4.6) who underwent GE at Rady Children's Hospital, San Diego between May 2018 and July 2019 (identified via electronic health record) participated in a structured phone interview. Caregivers reported a positive experience due to the procedural team's responsiveness to the needs of YASD and appropriately answering/addressing questions/concerns. Caregivers reported a need for ASD-specific information on how to prepare for GE. Specific recommendations are discussed. Study findings offer strategies to improve the care experience of YASD undergoing GE. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01