Preferred Outcome Measures in Treatments for Challenging Behaviour in Individuals with Intellectual Disabilities: Results of an Inclusive Delphi Method

Autor/inn/en	de Kuijper, Gerda M.; Den Besten-van Ravenswaaij, Janneke J. C.; Hoekstra, Pieter J.; de Bildt, Annelies
Titel	Preferred Outcome Measures in Treatments for Challenging Behaviour in Individuals with Intellectual Disabilities: Results of an Inclusive Delphi Method
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 36 (2023) 2, S.374-384 (11 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (de Kuijper, Gerda M.) ORCID (de Bildt, Annelies)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.13067
Schlagwörter	Behavior Problems; Intellectual Disability; Outcomes of Treatment; Intervention; Evaluation Methods; Behavior Modification; Drug Therapy; Quality of Life; Daily Living Skills; Caregiver Role; Family Environment + Suchen Sie Ihr Suchwort? Intellect; Disability; Disabilities; Verstand; Behinderung; Behaviour modification; Verhaltensänderung; Lebensqualität; Alltagsfertigkeit; Familienmilieu
Abstract	Background: Interventions for challenging behaviours in individuals with intellectual disabilities benefit from outcome monitoring that takes clients' preferences into account. We determined clients' and representatives' preferred outcome domains and measures to secure their involvement in treatment decisions for challenging behaviours. Method: We used an inclusive Delphi method. A focus group of individuals with mild intellectual disabilities and representatives of those with moderate and severe intellectual disabilities prepared the first round by assisting us in collecting possible outcomes. Panels of individuals with intellectual disabilities and representatives were composed to achieve consensus on instruments for preferred outcome domains. Results: Preferred outcome domains were behaviour, side-effects of psychotropic drugs, quality of life, daily functioning, caregiver burden and family quality of life. Corresponding outcome measures included self-report, interview and proxy-scales, including spoken versions. Conclusion: Including the preferred domains on outcomes of interventions for challenging behaviours is recommended. Research on corresponding outcome measures is necessary. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01