Dementia in People with Severe/Profound Intellectual (And Multiple) Disabilities: Practice-Based Observations of Symptoms

Autor/inn/en	Wissing, Maureen B. G.; Fokkens, Andrea S.; Dijkstra, Roos; Hobbelen, Johannes S. M.; van der Putten, Annette A. J.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D.
Titel	Dementia in People with Severe/Profound Intellectual (And Multiple) Disabilities: Practice-Based Observations of Symptoms
Quelle	In: Journal of Mental Health Research in Intellectual Disabilities, 15 (2022) 4, S.364-393 (30 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Wissing, Maureen B. G.) ORCID (Fokkens, Andrea S.) ORCID (Dijkstra, Roos) ORCID (Hobbelen, Johannes S. M.) ORCID (van der Putten, Annette A. J.) ORCID (De Deyn, Peter P.) ORCID (Waninge, Aly) ORCID (Dekker, Alain D.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1931-5864
DOI	10.1080/19315864.2022.2061092
Schlagwörter	Dementia; Severe Intellectual Disability; Multiple Disabilities; Symptoms (Individual Disorders); Daily Living Skills; Behavior Change; Psychological Patterns; Anxiety; Eating Habits; Communication Skills; Verbal Communication; Psychomotor Skills; Down Syndrome; Foreign Countries; Allied Health Personnel; Attitudes; Family Attitudes; Alzheimers Disease; Netherlands + Suchen Sie Ihr Suchwort? Demenz; Multiple disability; Mehrfachbehinderung; Psychiatrische Symptomatik; Alltagsfertigkeit; Angst; Ernährungsgewohnheit; Essgewohnheit; Kommunikationsstil; Psychomotorische Aktivität; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Ausland; Attitude; Einstellung; Verhalten; Niederlande
Abstract	Introduction: Observable dementia symptoms are hardly studied in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D). Insight in symptomatology is needed for timely signaling/diagnosis. This study aimed to identify practice-based observations of dementia symptoms in this population. Methods: Care professionals and family members were invited to complete a survey about symptoms. Quantitatively analyzed survey data were further deepened through semi-structured interviews with care professionals having vast experience in signaling/diagnosing dementia in this population. Symptoms were categorized using a symptom matrix. Results: Survey respondents and interviewees frequently observed a decline in activities of daily living (ADL) functioning and behavioral and psychological changes, like increased irritability, anxiety, apathy and decreased eating/drinking behavior. Cognitive symptoms were particularly recognized in persons with verbal communication and/or walking skills. To lesser extent motor changes and medical comorbidities were reported. Conclusion: Increased insight in dementia symptoms contributes to developing a dedicated screening instrument for dementia in people with SPI(M)D. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01