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Autor/inn/enLindly, Olivia J.; Cabral, Jacqueline; Mohammed, Ruqayah; Garber, Ivonne; Mistry, Kamila B.; Kuhlthau, Karen A.
Titel"I Don't Do Much without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children
QuelleIn: Journal of Autism and Developmental Disorders, 52 (2022) 8, S.3598-3611 (14 Seiten)
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ZusatzinformationORCID (Lindly, Olivia J.)
ORCID (Kuhlthau, Karen A.)
Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN0162-3257
DOI10.1007/s10803-021-05240-0
SchlagwörterKnowledge Level; Parents; Young Children; Autism; Pervasive Developmental Disorders; Services; Information Seeking; Parent Role; Health Materials; Information Literacy
AbstractLittle is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. (As Provided).
AnmerkungenSpringer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2024/1/01
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