The Role of Parental Advocacy in Addressing Service Disparities for Transition-Aged Youth on the Autism Spectrum

Autor/inn/en	Lee, Chung eun; Burke, Meghan M.; DaWalt, Leann Smith; Li, Chak; Taylor, Julie Lounds
Titel	The Role of Parental Advocacy in Addressing Service Disparities for Transition-Aged Youth on the Autism Spectrum
Quelle	In: Autism: The International Journal of Research and Practice, 26 (2022) 4, S.1001-1006 (6 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Lee, Chung eun) ORCID (Li, Chak) ORCID (Taylor, Julie Lounds)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613211057660
Schlagwörter	Parent Role; Advocacy; Autism; Pervasive Developmental Disorders; Adolescents; Youth; Services; Transitional Programs; Adjustment (to Environment); Individual Characteristics; Illinois; Tennessee; Wisconsin; National Longitudinal Transition Study of Special Education Students; Social Responsiveness Scale; Vineland Adaptive Behavior Scales + Suchen Sie Ihr Suchwort? Parental role; Elternrolle; Sozialanwaltschaft; Autismus; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Dienstleistung; Personality characteristic; Personality traits; Persönlichkeitsmerkmal
Abstract	Youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. Correlates of service access identified in the literature--such as family resources, race/ethnicity, or youth functioning--can be difficult to change and may not be feasible targets for intervention. This study focused on a potential contributor to service access that is malleable: parental advocacy. Specifically, we examined the association between parental advocacy activities and number of services among transition-aged youth with ASD, after accounting for indicators of youth functioning and family demographic variables (high school exit, co-occurring intellectual disability, social impairments, adaptive behaviors, race/ethnicity, state of residence, family income, and parental depression). Participants included 185 families of youth with ASD who are part of an ongoing randomized controlled trial. Data were collected at baseline (prior to intervention) via parental questionnaire and structured interview. Using hierarchical regression analyses, we found that parental advocacy activities were significantly and strongly associated with service receipt after controlling for youth functioning and family demographic factors. Youth whose parents are less involved in advocacy activities might be at-risk for service disparities. To close the gaps for service disparities, future interventions may target parental advocacy skills. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01