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Autor/inn/enGoodwin, Jane; Rob, Priyanka; Freeston, Mark; Garland, Deborah; Grahame, Victoria; Kernohan, Ashleigh; Labus, Marie; Osborne, Malcolm; Parr, Jeremy R; Wright, Catharine; Rodgers, Jacqui
TitelCaregiver Perspectives on the Impact of Uncertainty on the Everyday Lives of Autistic Children and Their Families
QuelleIn: Autism: The International Journal of Research and Practice, 26 (2022) 4, S.827-838 (12 Seiten)
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ZusatzinformationORCID (Goodwin, Jane)
Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1362-3613
DOI10.1177/13623613211033757
SchlagwörterAutism; Pervasive Developmental Disorders; Anxiety; Family Environment; Responses; Child Rearing; Parent Attitudes; Coping; Well Being; Children; Environmental Influences; Stress Management; Self Esteem; Friendship
AbstractApproximately 50% of autistic children experience high anxiety. Intolerance of uncertainty (tendency to react negatively to uncertain situations) is a key mechanism in the development and maintenance of anxiety. This study aimed to provide a descriptive, thematic analysis of the impact on uncertainty on the daily lives of autistic children and their families. Semi-structured interviews were conducted with parents and caregivers of 53 autistic children (including 3 dyads) aged 6-16 years to elicit examples of uncertain situations that the children found challenging and to explore the impact of these situations on family life. Thematic analysis revealed five overarching themes: child's reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. These findings provide a crucial understanding into the range of uncertain situations autistic children with anxiety experience. Anxiety-reduction approaches based on increasing tolerance to everyday uncertain situations could help improve well-being, quality of life and participation for autistic children and their families. (As Provided).
AnmerkungenSAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2024/1/01
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