Thinking through Participatory Action Research with People with Late-Stage Dementia: Research Note on Mistakes, Creative Methods and Partnerships

Autor/inn/en	Smith, Louisa; Phillipson, Lyn
Titel	Thinking through Participatory Action Research with People with Late-Stage Dementia: Research Note on Mistakes, Creative Methods and Partnerships
Quelle	In: International Journal of Social Research Methodology, 24 (2021) 6, S.775-780 (6 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Smith, Louisa)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1364-5579
DOI	10.1080/13645579.2020.1810997
Schlagwörter	Action Research; Dementia; Participatory Research; Nursing Homes; Research Problems; Older Adults; Design; Handicrafts; Creative Activities; Foreign Countries; Barriers; Researchers; Australia + Suchen Sie Ihr Suchwort? Projektforschung; Demenz; Forschungstätigkeit; Sonderheim; Forschungskritik; Älterer Erwachsener; Handwerk; Ausland; Researcher; Forscher; Australien
Abstract	The perspective of people with dementia, particularly late-stage dementia, is often excluded from research, even from methods like Participatory Action Research (PAR), which aim to democratise research. This research note outlines how a PAR project engaged with the perspective of people with late-stage dementia in a residential aged care facility. Firstly, we focus on our mistakes: methods which did not appropriately include or engage this group. Secondly, we explore how methods drawn from design thinking, creative and arts-based research were used to encourage staff and families to think about the perspective of people with dementia. Finally, we explain how only after this extensive creative consultation and through a partnership with a social enterprise was the PAR project able to engage people with late-stage dementia in meaningful ways. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01