Ethics of Care in Participatory Health Research: Mutual Responsibility in Collaboration with Co-Researchers

Autor/inn/en	Groot, B. C.; Vink, M.; Haveman, A.; Huberts, M.; Schout, G.; Abma, T. A.
Titel	Ethics of Care in Participatory Health Research: Mutual Responsibility in Collaboration with Co-Researchers
Quelle	In: Educational Action Research, 27 (2019) 2, S.286-302 (17 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0965-0792
DOI	10.1080/09650792.2018.1450771
Schlagwörter	Ethics; Participatory Research; Cooperation; Researchers; Responsibility; Moral Values; Self Management; Foreign Countries; Caring; Social Justice; Patients; Personal Narratives; Collaborative Writing; Writing Processes; Perspective Taking; Security (Psychology); Reflection; Expertise; Caregivers; Caregiver Attitudes; Psychiatric Services; Public Policy; Crisis Intervention; Urban Environment; Netherlands + Suchen Sie Ihr Suchwort? Ethik; Forschungstätigkeit; Co-operation; Kooperation; Researcher; Forscher; Verantwortungsübernahme; Zuständigkeit; Moral value; Ethischer Wert; Selbstmanagement; Ausland; Care; Pflege; Sorge; Betreuung; Soziale Gerechtigkeit; Patient; Erlebniserzählung; Zukunftsperspektive; Security; Psychology; Sicherheit; Expert appraisal; Caregiver; Carer; Betreuungsperson; Pfleger; Psychiatric care; Psychiatrische Versorgung; Öffentliche Ordnung; Krisenintervention; Stadtökologie; Niederlande
Abstract	In the field of participatory health research (PHR) and related action research paradigms, limitations of standard ethical codes and institutional review processes have been identified. PHR is highly situational and relational, part of a hierarchical health care context and therefore ethics of care has been suggested as a helpful theoretical approach that emphasises responsibilities and relationships. The purpose of this article is to explore the value of Tronto's second-generation ethics of care for reflection on ethical challenges experienced by academic researchers. Using the design of a collaborative auto-ethnography, this article starts from a story of a researcher who deals with dilemmas in responsibility to care for co-researchers with lived experiences during a PHR study in the field of acute psychiatric care. By analysing the challenges together with all co-researchers, using a framework of ethics of care, we discovered the importance of self-care and existential safety for an ethical PHR practice. The reflexive meta-narrative shows that the ethics of care lens is useful to untangle moral dilemmas in all participatory research-related paradigms for all engaged. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01