Legal, Ethical, and Rights Issues in the Adoption and Use of the "My Health Record" by People with Communication Disability in Australia

Autor/inn/en	Hemsley, Bronwyn; McCarthy, Shaun; Adams, Natalie; Georgiou, Andrew; Hill, Sophie; Balandin, Susan
Titel	Legal, Ethical, and Rights Issues in the Adoption and Use of the "My Health Record" by People with Communication Disability in Australia
Quelle	In: Journal of Intellectual & Developmental Disability, 43 (2018) 4, S.506-514 (9 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Balandin, Susan)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1366-8250
DOI	10.3109/13668250.2017.1294249
Schlagwörter	Foreign Countries; Legal Problems; Ethics; Civil Rights; Communication Disorders; Language Impairments; Disabilities; Records (Forms); Electronic Publishing; Health Services; Intellectual Disability; Decision Making; Australia + Suchen Sie Ihr Suchwort? Ausland; Ethik; Bürgerrechte; Grundrechte; Zivilrecht; Kommunikationsstörung; Speech disorder; Speech disorders; Speech disabilities; Speech disability; Speech handicap; Speech handicaps; Speech impairment; Speech impairments; Language handicaps; Sprachbehinderung; Handicap; Behinderung; Formularsammlung; Elektronisches Publizieren; Health service; Gesundheitsdienst; Gesundheitswesen; Intellect; Disability; Disabilities; Verstand; Decision-making; Entscheidungsfindung; Australien
Abstract	Background: The aim of this review was to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: We undertook a narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to (a) capacity and consent; (b) roles of nominated or authorised representatives in the system; and (c) the way decisions are made in relation to the use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in the use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01