A Cross-Sectional Study of School Experiences of Boys with Duchenne and Becker Muscular Dystrophy

Autor/inn/en	Soim, Aida; Lamb, Molly; Campbell, Kimberly; Pandya, Shree; Peay, Holly; Howard, James F., Jr.; Fox, Deborah
Titel	A Cross-Sectional Study of School Experiences of Boys with Duchenne and Becker Muscular Dystrophy
Quelle	In: Physical Disabilities: Education and Related Services, 35 (2016) 2, S.1-22 (22 Seiten) PDF als Volltext kostenfreie Datei Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	2372-451X
Schlagwörter	Physical Disabilities; Student Needs; Males; Occupational Therapy; Paraprofessional School Personnel; Caregivers; Educational Attainment; Parent Background; Psychomotor Skills; Accessibility (for Disabled); Interviews; Cognitive Ability; Speech Language Pathology; Neurological Impairments; Records (Forms); Surveys; Individual Characteristics; Statistical Analysis; Resource Room Programs; New York; Arizona; Colorado; Georgia; Iowa + Suchen Sie Ihr Suchwort? Physical handicap; Körperbehinderung; Male; Männliches Geschlecht; Beschäftigungstherapie; Caregiver; Carer; Betreuungsperson; Pfleger; Bildungsabschluss; Bildungsgut; Elternhaus; Psychomotorische Aktivität; Accessibility; Zugänglichkeit; Interviewing; Interviewtechnik; Denkfähigkeit; Neurodegenerative Erkrankung; Formularsammlung; Survey; Umfrage; Befragung; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Statistische Analyse
Abstract	The objectives of this study were to investigate types of supportive school services received and factors related to provision of these services. We conducted a cross-sectional study to describe the school experience of males with Duchenne and Becker muscular dystrophies. Study subjects were identified through the Muscular Dystrophy Surveillance, Tracking, and Research Network. Non-ambulatory males with Duchenne muscular dystrophy (DMD) were significantly more likely to use an instructional assistant and resource room support when compared to ambulant males with DMD at the time of the caregiver interview. Males with DMD who received occupational therapy were more likely to use an instructional assistant, while those who received speech therapy were more likely to repeat a grade, use an instructional assistant, and receive resource room support. Males with DMD whose primary caregivers had less than 12 years of education were more likely to use an instructional assistant and resource room support. Non-ambulatory males with DMD should continue receiving appropriate school accommodations so they can keep pace with their physical demands. Males with DMD with speech deficits should be considered for various educational interventions. [This article was also written by the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).] (As Provided).
Anmerkungen	Division for Physical, Health, and Multiple Disabilities, Council for Exceptional Children. 1110 North Glebe Road Suite 300, Arlington, VA 22201. Tel: 888-232-7733; Fax: 703-264-9494; Web site: http://www.cec.sped.org
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01