Understanding Deinstitutionalization: What Families Value and Desire in the Transition to Community Living

Autor/inn/en	Jones, Jennifer L.; Gallus, Kami L.
Titel	Understanding Deinstitutionalization: What Families Value and Desire in the Transition to Community Living
Quelle	In: Research and Practice for Persons with Severe Disabilities, 41 (2016) 2, S.116-131 (16 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1540-7969
DOI	10.1177/1540796916637050
Schlagwörter	Disabilities; Normalization (Disabilities); Daily Living Skills; Inclusion; Adults; Sibling Relationship; Parents; Attitudes toward Disabilities; Intellectual Disability; Developmental Disabilities; Family (Sociological Unit); Family Relationship; Phenomenology; Aging (Individuals); Individualized Transition Plans; Interviews; Independent Living; Quality of Life; Community Services; Mixed Methods Research; Personal Narratives; Oklahoma + Suchen Sie Ihr Suchwort? Handicap; Behinderung; Normalisierung; Alltagsfertigkeit; Inklusion; Sibling relations; Geschwisterbeziehung; Eltern; Intellect; Disability; Disabilities; Verstand; Entwicklungsstörung; Familie; Phenomenological psychology; Phänomenologie; Psychologie; Aging; Altern; Interviewing; Interviewtechnik; Selbstverantwortung; Lebensqualität; Gemeindenahe Versorgung; Erlebniserzählung
Abstract	The deinstitutionalization movement that began 50 years ago remains a current issue for professionals and families. Using qualitative phenomenology methodology, we investigated the experience of mandated deinstitutionalization for parents and siblings whose relatives with intellectual and developmental disabilities (IDD) transitioned from institutionalization to community living within the past 1 to 3 years. Findings from the current study align with previous research wherein, over time, most families shift from opposition to satisfaction regarding community living; however, family members' narratives in the current study reveal there is more to the process of deinstitutionalization than the outcome of satisfaction. Family members, regardless of current opposition or satisfaction, shared six common themes concerning what they desired and valued throughout the deinstitutionalization process: (a) respect our relative's history, (b) collaborate: make us feel like we are a part of the process, (c) provide quality care, (d) provide consistent care, (e) include my relative in the community, and (f) remember we are family. As the desirable goals of full community inclusion (e.g., education, community living, competitive employment) are implemented through policy and practice, professionals must continue to develop intentional collaborations with, and supports for, families during times of transition in conjunction with services and supports developed for individuals with IDD. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01