Adult Sibling Relationships with Brothers and Sisters with Severe Disabilities

Autor/inn/en	Rossetti, Zach; Hall, Sarah
Titel	Adult Sibling Relationships with Brothers and Sisters with Severe Disabilities
Quelle	In: Research and Practice for Persons with Severe Disabilities, 40 (2015) 2, S.120-137 (18 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1540-7969
DOI	10.1177/1540796915592829
Schlagwörter	Adults; Sibling Relationship; Severe Disabilities; Online Surveys; Developmental Disabilities; Mental Retardation; Influences; Emotional Response; Stress Variables; Context Effect; Individual Characteristics; Family Environment; Proximity; Qualitative Research; Down Syndrome; Cerebral Palsy; Role; Coding; Interaction; Psychological Patterns; Caregivers + Suchen Sie Ihr Suchwort? Sibling relations; Geschwisterbeziehung; Severe disability; Schwerbehinderung; Entwicklungsstörung; Geistige Behinderung; Influence; Einfluss; Einflussfaktor; Emotionales Verhalten; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Familienmilieu; Lebensnähe; Qualitative Forschung; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Hirnlähmung; Rollen; Codierung; Programmierung; Interaktion; Caregiver; Carer; Betreuungsperson; Pfleger
Abstract	The purpose of this qualitative study was to examine perceptions of adult sibling relationships with a brother or sister with severe disabilities and the contexts affecting the relationships. Adult siblings without disabilities (N = 79) from 19 to 72 years of age completed an online survey with four open-ended questions about their relationship with their brother or sister with intellectual and developmental disabilities (IDD) and extensive or pervasive support needs. Inductive analysis yielded findings related to perceptions of the sibling relationship and contexts that influence the sibling relationship. More than half of the relationships were described as being close. The emotional impact of the relationships included feelings of guilt and joy, as well as frustration and stress that were often related to current caregiving and future planning responsibilities. The contextual factors influencing relationship development included several characteristics of their brother or sister with IDD related to his or her disability, as well as sibling proximity. Implications for research and practice related to sibling relationships are provided for professionals, families, and the siblings themselves. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01