Self-Reports versus Parental Perceptions of Health-Related Quality of Life among Deaf Children and Adolescents

Autor/inn/en	Pardo-Guijarro, María Jesús; Martínez-Andrés, María; Notario-Pacheco, Blanca; Solera-Martínez, Montserrat; Sánchez-López, Mairena; Martínez-Vizcaíno, Vicente
Titel	Self-Reports versus Parental Perceptions of Health-Related Quality of Life among Deaf Children and Adolescents
Quelle	In: Journal of Deaf Studies and Deaf Education, 20 (2015) 3, S.275-282 (8 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1081-4159
DOI	10.1093/deafed/env018
Schlagwörter	Quality of Life; Deafness; Children; Adolescents; Self Disclosure (Individuals); Parent Attitudes; Health Conditions; Child Health; Observation; Questionnaires; Personal Autonomy; Social Support Groups; Correlation; Student Attitudes; Peer Relationship; Parent Child Relationship; Elementary Secondary Education + Suchen Sie Ihr Suchwort? Lebensqualität; Gehörlosigkeit; Taubstummheit; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Elternverhalten; Beobachtung; Fragebogen; Individuelle Autonomie; Social support; Soziale Unterstützung; Korrelation; Schülerverhalten; Peer-Beziehungen; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung
Abstract	The aim of this study was to assess the agreement between deaf children's and adolescents' self-ratings of health-related quality of life (HRQoL) and their parents' proxy reports. This observational cross-sectional study included 114 deaf 8- to 18-years-old students and proxy family members. HRQoL was measured using the KIDSCREEN-27 questionnaire, which was adapted to Spanish sign language for children, with a written version for parents. Respondents completed a self-administered paper questionnaire. Parents' and children's mean scores differences were not significant, except for the "Autonomy and Parents" and "Peers and Social Support" dimensions. Children aged 8-11 years scored higher in some domains of QoL compared to those aged 12-18 years. The level of agreement between children/adolescents' and parents/proxies' responses was acceptable, except for the dimension "Autonomy and Parents." Overall, deaf children/adolescents' self-ratings of HRQoL did not differ from their parents' proxy reports; however, differences were found in the dimensions that explored the quality of the interaction of children/adolescents and parents, the perceived level of autonomy, and social relations and support. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01