Access to Services, Quality of Care, and Family Impact for Children with Autism, Other Developmental Disabilities, and Other Mental Health Conditions

Autor/inn/en	Vohra, Rini; Madhavan, Suresh; Sambamoorthi, Usha; St Peter, Claire
Titel	Access to Services, Quality of Care, and Family Impact for Children with Autism, Other Developmental Disabilities, and Other Mental Health Conditions
Quelle	In: Autism: The International Journal of Research and Practice, 18 (2014) 7, S.815-826 (12 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361313512902
Schlagwörter	Access to Health Care; Children; Autism; Pervasive Developmental Disorders; Developmental Disabilities; Special Health Problems; Costs; Employment Level; Employed Parents; Screening Tests; Regression (Statistics); Time; Child Rearing; Cerebral Palsy; Down Syndrome; Mental Retardation; Developmental Delays; Attention Deficit Hyperactivity Disorder; Anxiety Disorders; Behavior Problems; Depression (Psychology); Comorbidity; Participative Decision Making; Parent Participation; Adolescents; Individual Characteristics; National Surveys; Gender Differences; Age Differences; Racial Differences; Socioeconomic Status; Place of Residence; Marital Status; Family Structure; Statistical Analysis + Suchen Sie Ihr Suchwort? Child; Kind; Kinder; Autismus; Entwicklungsstörung; Zivilisationskrankheit; Cost; Kosten; Beschäftigungsgrad; Screening-Verfahren; Regression; Regressionsanalyse; Zeit; Kindererziehung; Hirnlähmung; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Geistige Behinderung; Entwicklungsverzögerung; Elternmitwirkung; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Geschlechterkonflikt; Age; Difference; Age difference; Altersunterschied; Rassenunterschied; Socio-economic status; Sozioökonomischer Status; Wohnort; Familienstand; Familienkonstellation; Familiensystem; Statistische Analyse
Abstract	This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3-17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009-2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child's special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10