Measuring Subjective Quality of Life in Autistic Adults with the PROMIS Global--10: Psychometric Study and Development of an Autism-Specific Scoring Method

Autor/inn/en	Williams, Zachary J.; Cascio, Carissa J.; Woynaroski, Tiffany G.
Titel	Measuring Subjective Quality of Life in Autistic Adults with the PROMIS Global--10: Psychometric Study and Development of an Autism-Specific Scoring Method
Quelle	In: Autism: The International Journal of Research and Practice, 27 (2023) 1, S.145-157 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Williams, Zachary J.) ORCID (Cascio, Carissa J.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613221085364
Schlagwörter	Quality of Life; Autism Spectrum Disorders; Adults; Psychometrics; Scoring; Gender Differences; Sexual Identity; LGBTQ People; Health; Individual Characteristics; Test Reliability; Test Validity + Suchen Sie Ihr Suchwort? Lebensqualität; Autism; Autismus; Psychometry; Psychometrie; Bewertung; Geschlechterkonflikt; Geschlechtsidentität; Sexuelle Identität; Gesundheit; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Testreliabilität; Testvalidität
Abstract	Quality of life is widely acknowledged as one of the most important outcomes in autism research, but few measures of this construct have been validated for use in autistic people. The goal of the current study was to examine the psychometric properties of the Patient-Reported Outcomes Measurement Information System Global--10, an established self-report measure of health-related quality of life, in a sample of 901 autistic adults (predominantly female and adult-diagnosed) recruited from the Simons Foundation Powering Autism Research for Knowledge cohort. Using an item response theory framework, we performed a comprehensive psychometric evaluation of the Patient-Reported Outcomes Measurement Information System Global--10 in this sample, examining its latent structure, differential item functioning, reliability, and construct validity. After developing an autism-specific measurement model, the Patient-Reported Outcomes Measurement Information System Global--10 demonstrated excellent psychometric properties in the current sample, including excellent model-data fit, high reliability, minimal differential item functioning across subgroups of autistic adults, and an expected pattern of correlations with external variables. Exploratory analyses indicated that lower quality of life was associated with female sex and identified as a sexual/gender minority. A free online score calculator has been created to facilitate the use and interpretation of normed Patient-Reported Outcomes Measurement Information System Global--10 general quality of life latent trait scores for clinical and research applications (available at https://asdmeasures.shinyapps.io/promis_qol). (As Provided).
Anmerkungen	SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01