"Respect the Way I Need to Communicate with You": Healthcare Experiences of Adults on the Autism Spectrum

Autor/inn/en	Nicolaidis, Christina; Raymaker, Dora M.; Ashkenazy, Elesia; McDonald, Katherine E.; Dern, Sebastian; Baggs, Amelia E. V.; Kapp, Steven K.; Weiner, Michael; Boisclair, W. Cody
Titel	"Respect the Way I Need to Communicate with You": Healthcare Experiences of Adults on the Autism Spectrum
Quelle	In: Autism: The International Journal of Research and Practice, 19 (2015) 7, S.824-831 (8 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361315576221
Schlagwörter	Autism; Pervasive Developmental Disorders; Adults; Health Services; Participatory Research; Semi Structured Interviews; Experience; Interaction; Communication Skills; Perceptual Impairments; Barriers; Human Body; Cognitive Processes; Nonverbal Communication; Symptoms (Individual Disorders); Interpersonal Communication; Interpersonal Relationship; Knowledge Level; Allied Health Personnel; Communication Strategies; Social Bias; Access to Health Care; Qualitative Research; Patients; Oregon + Suchen Sie Ihr Suchwort? Autismus; Health service; Gesundheitsdienst; Gesundheitswesen; Forschungstätigkeit; Erfahrung; Interaktion; Kommunikationsstil; Perceptual handicaps; Wahrnehmungsstörung; Menschlicher Körper; Cognitive process; Kognitiver Prozess; Non-verbal communication; Nonverbale Kommunikation; Psychiatrische Symptomatik; Interpersonale Kommunikation; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Wissensbasis; Kommunikationsstrategie; Qualitative Forschung; Patient
Abstract	Our objective was to obtain an in-depth understanding of autistic adults' experiences with healthcare and their recommendations for improving care. Our academic-community partnership used a community-based participatory research approach to conduct semi-structured, open-ended interviews with 39 autistic adults and 16 people who had experience supporting autistic adults in healthcare settings. Participants identified patient-level, autism-related factors that impact healthcare interactions, including verbal communication skills, sensory sensitivities, challenges with body awareness, slow processing speed, atypical non-verbal communication, and challenges with organization. However, the success of healthcare interactions largely depended on the interplay between patient- and provider-level factors, as well as the larger context in which patients were receiving care. Provider-level factors included providers' knowledge about autism in adults, incorrect assumptions about individual patients, willingness to allow written communication, use of accessible language, openness to providing other accommodations, and skill in appropriately incorporating supporters. System-level factors included the availability of supporters, complexity of the healthcare system, accessibility of healthcare facilities, and stigma about autism. Further efforts are needed to empower patients, adequately train providers, increase the accessibility of the healthcare system, and decrease discrimination. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01