Literaturnachweis - Detailanzeige
| Autor/inn/en | Mirza, I.; Tareen, A.; Davidson, L. L.; Rahman, A. |
|---|---|
| Titel | Community Management of Intellectual Disabilities in Pakistan: A Mixed Methods Study |
| Quelle | In: Journal of Intellectual Disability Research, 53 (2009) 6, S.559-570 (12 Seiten)Infoseite zur Zeitschrift
PDF als Volltext |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 0964-2633 |
| DOI | 10.1111/j.1365-2788.2009.01176.x |
| Schlagwörter | Mental Retardation; Focus Groups; Caregivers; Home Management; Foreign Countries; Community Services; Community Programs; Attitude Measures; Interviews; Access to Health Care; Parents; Child Rearing; Stress Variables; Questionnaires; Social Bias; Social Attitudes; Family Environment; Intervention; Rural Areas; Disability Identification; Pakistan |
| Abstract | Background: Pakistan has one of the highest reported rates of childhood intellectual disabilities (ID) in the world. Prevalence estimates vary from 19.1/1000 for serious ID to 65/1000 for mild ID. Methods: We surveyed carers of persons with ID (n = 100) using quantitative and qualitative instruments. We conducted in-depth interviews of carers (n = 16) and key primary health providers (n = 10). We also carried out focus groups (n = 7). Data were triangulated and interpreted in light of peer reviewed literature. Results: There was a delay of 2.92 (95% CI 1.9 to 3.94) to 4.17 (95% CI 2.34 to 6.01) years between detection and seeking of care. Parental stress associated with caring for these children was high (mean Self-Reporting Questionnaire score 8.4; 95% CI 6.80 to 9.91). Home management consisted mainly of physical containment. Stigma associated with ID contributed to decreased opportunity for these children and families to participate in community activities. There was a lack of knowledge about causation and effective interventions for ID. Conclusions: Our findings suggest that there is significant delay in detection of ID especially in rural setting where more than 70% of population of Pakistan resides. This missed opportunity for rehabilitation in early formative years is a cause of significant distress for the caregivers who rarely receive valid information about course, prognosis and what remedial action to take. There is a need to develop feasible, cost-effective, community level interventions, which can be integrated into existing healthcare systems. (Contains 4 tables.) (As Provided). |
| Anmerkungen | Blackwell Publishing. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8599; Fax: 781-388-8232; e-mail: customerservices@blackwellpublishing.com; Web site: http://www.blackwellpublishing.com/jnl_default.asp |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2017/4/10 |
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