Family Carers' Experiences of Dysphagia after a Stroke: An Exploratory Study of Spouses Living in a Large Metropolitan City

Autor/inn/en	Robinson, Anna; Coxon, Kirstie; McRae, Jackie; Calestani, Melania
Titel	Family Carers' Experiences of Dysphagia after a Stroke: An Exploratory Study of Spouses Living in a Large Metropolitan City
Quelle	In: International Journal of Language & Communication Disorders, 57 (2022) 5, S.924-936 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Robinson, Anna) ORCID (Coxon, Kirstie) ORCID (McRae, Jackie) ORCID (Calestani, Melania)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1368-2822
DOI	10.1111/1460-6984.12724
Schlagwörter	Neurological Impairments; Eating Disorders; Family Role; Caregivers; Spouses; Experience; Older Adults; Emotional Response; Interpersonal Relationship; Life Style; Urban Areas + Suchen Sie Ihr Suchwort? Neurodegenerative Erkrankung; Appetite disorder; Essstörung; Caregiver; Carer; Betreuungsperson; Pfleger; Ehepartner; Erfahrung; Älterer Erwachsener; Emotionales Verhalten; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Lebensstil; Urban area; Stadtregion
Abstract	Background: People with post-stroke dysphagia often require informal care from family to facilitate safe swallowing, modify food/drink or administer tube-feeds. Previous survey studies have found dysphagia may increase family caregiver burden. However, the experiences of family members in this population have not been fully explored. Aims: To explore family members' experiences of living with a spouse with post-stroke dysphagia. Methods & Procedures: This exploratory qualitative study used one-to-one semi-structured interviews to explore family members' experiences. They were asked open questions about previous eating routines, dysphagia onset, their role and future hopes. Interviews were audio-recorded, transcribed and analysed thematically with an inductive approach to determine key features of family members' experiences. Outcomes & Results: Five spouses aged 70-93 years participated. Their relatives' strokes happened 3 months to 3 years before the interview. Five themes were identified: 'I do all of it'; making sense of dysphagia; emotional responses; reflecting on relationships; and redefining lifestyle. Conclusions & Implications: It is important to consider family members' perspectives as they often provide vital care to loved-ones with dysphagia. In relation to eating and drinking, maintaining elements of previous routines seems important to families. Healthcare professionals should consider these when making recommendations for rehabilitation. Family members have differing perspectives of the comparative impact of dysphagia; patient and family priorities should be explored for healthcare professionals to provide better-targeted support. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01