Paid Carers' Understanding and Experiences of Meaningful Involvement in Bereavement for People with Intellectual Disability When a Significant Other Is Dying

Autor/inn/en	Hedayioglu, Julie; Marsden, Sue; Sackree, Amy; Oliver, David
Titel	Paid Carers' Understanding and Experiences of Meaningful Involvement in Bereavement for People with Intellectual Disability When a Significant Other Is Dying
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 35 (2022) 1, S.143-149 (7 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Hedayioglu, Julie) ORCID (Oliver, David)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12929
Schlagwörter	Caregivers; Residential Care; Group Homes; Intellectual Disability; Grief; Interpersonal Relationship; Death; Interpersonal Communication; Caregiver Role; Inclusion; Specialists + Suchen Sie Ihr Suchwort? Caregiver; Carer; Betreuungsperson; Pfleger; Gruppenheim; Intellect; Disability; Disabilities; Verstand; Behinderung; Trauer; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Sterbefall; Tod; Todesfall; Interpersonale Kommunikation; Inklusion
Abstract	Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured interviews were conducted with paid carers working across two residential homes. Results: Four themes were identified: (a) challenges in having conversations about death and dying; (b) meaningful involvement of residents in the bereavement process; (c) the relationship between paid carers and residents (including the impact of a resident's death on paid carers); and (d) the support needs of paid carers. Conclusions: The recommendations from previous research of meaningfully involving people with intellectual disabilities in the bereavement process have not filtered fully into practice. Paid carers still highlight the need for specialist support and advice to help them discuss and increase involvement in death and dying. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01