Family Perceptions of the Impacts of a Home and Community Based Services Autism Waiver: Making Family Life Possible

Autor/inn/en	Eskow, Karen Goldrich; Summers, Jean Ann
Titel	Family Perceptions of the Impacts of a Home and Community Based Services Autism Waiver: Making Family Life Possible
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 32 (2019) 1, S.159-171 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Eskow, Karen Goldrich)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12518
Schlagwörter	Autism; Pervasive Developmental Disorders; Youth; Access to Health Care; Community Services; Family Attitudes; Program Effectiveness; Barriers; Quality of Life; Family Programs + Suchen Sie Ihr Suchwort? Autismus; Jugend; Jugendlicher; Jugendalter; Gemeindenahe Versorgung; Lebensqualität; Family program; Familienprogramm
Abstract	Background: An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. Methods: This study used qualitative research methods to explore parent perspectives about the impact of HCBS Waiver services on the child/youth with autism and their family. In-depth interviews focused on aspects of the programme they valued, identification of barriers and general issues they experienced. Results: Results of the qualitative study indicated that improved outcomes could be explained by providers of services who were well-trained, flexible and allowed parents' opportunities for choice regarding provision of services to meet child/youth and family needs. Conclusion: The findings of this study provide guideposts for further research about factors that contribute to satisfaction of families receiving waiver services for quality of life and child progress. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01