Parent/Caregiver Perspectives of Functioning in Autism Spectrum Disorders: A Comparative Study in Sweden and South Africa

Autor/inn/en	Viljoen, Marisa; Mahdi, Soheil; Griessel, David; Bölte, Sven; de Vries, Petrus J
Titel	Parent/Caregiver Perspectives of Functioning in Autism Spectrum Disorders: A Comparative Study in Sweden and South Africa
Quelle	In: Autism: The International Journal of Research and Practice, 23 (2019) 8, S.2112-2130 (19 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Viljoen, Marisa) ORCID (Bölte, Sven)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361319829868
Schlagwörter	Parents; Caregivers; Parent Attitudes; Autism; Pervasive Developmental Disorders; Foreign Countries; Comparative Education; Environmental Influences; Caregiver Attitudes; Attitudes toward Disabilities; Children; Adolescents; Sweden; South Africa + Suchen Sie Ihr Suchwort? Eltern; Caregiver; Carer; Betreuungsperson; Pfleger; Elternverhalten; Autismus; Ausland; Vergleichende Erziehungswissenschaft; Environmental influence; Umwelteinfluss; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Schweden; Südafrika; Süd-Afrika; Republik Südafrika; Südafrikanische Republik
Abstract	Functional outcomes in autism spectrum disorder can be highly variable given the heterogeneous nature of autism spectrum disorder and its interaction with environmental factors. We set out to compare parent/caregiver perceptions of functioning in two divergent countries that participated in the International Classification of Functioning Disability and Health (ICF) Core Set for Autism Spectrum Disorder development study. We focused on the frequency and content of items reported, and hypothesized that environmental factors would most frequently be reported as barriers to functioning in low-resource settings. Using frequency and qualitative content analysis, we compared data from South Africa (n = 22) and Sweden (n = 13). Frequency agreement was seen in three activities and participation categories, and one environmental factor. Obvious frequency differences were observed in one environmental factors category, six body functions categories and three activities and participation categories. Only three ICF categories (immediate family, attention functions, products and technology for personal use) differed in content. Contrary to our hypotheses, few differences in perspectives about environmental factors emerged. The universality of our findings supports the global usefulness of the recently developed ICF Core Sets for Autism Spectrum Disorder. We recommend that more comparative studies on autism spectrum disorder and functioning should be conducted, and that similar comparisons in other disorders where Core Sets have been developed may be valuable. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01